BLESSINGS FOR BECKY TRANSPLANT FUND

Most of you know by now about “BLESSINGS FOR BECKY TRANSPLANT FUN”  GoFundMe  page. It was set up to receive donations to help Becky with her ever-increasing financial needs. Thank you to all that have supported Becky through this Campaign. The response has been great!

I have had several people ask how they could give to Becky another way. (They are not comfortable with giving on-line)  I get that. I fully trust the GoFundMe website and I have talked to others that used it and were satisfied. As soon as a donation is made, the money is automatically deposited in the “BLESSINGS FOR BECKY TRANSPLANT FUND” at Fifth/Third Bank.

So,….. if you are one of those that don’t like giving on-line, and yet want to help Becky, you can go to any Fifth/Third Bank in person and make a donation to the

“BLESSINGS FOR BECKY TRANSPLANT FUND”

We opened this account last year. There were some issues with making a deposit to the account. These issues have been cleared up. YAY!

You should have no trouble making your “Blessing for Becky” now!

We know that God is Becky’s source. We want to let others have the opportunity to receive God’s blessing for their giving. 

Luke 6:38 Give, and it will be given to you. A good measure, pressed down, shaken together and running over, will be poured into your lap. For with the measure you use, it will be measured to you.”

 

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Brotherly Love….. (Marc’s Story)

I would like to share a story with you from the American Transplant Foundation. I love success stories! I hope to be sharing Becky’s some day soon!

Marc’s Story

Marc is a pragmatic man. A former venture capitalist and the current executive vice president of the Steadman Hawkins Research Foundation, Marc didn’t get where he is today by letting emotion rule the day. To Marc, life is about analyzing the facts and making a decision accordingly. Nothing more. “But, there are times one has to say, ‘What the heck? Go for it,’” he says.

So when his older brother needed a kidney, Marc gave him one, and he did it without a ton of emotion or debate.

“If you see someone standing in front of a dangerous situation, you do something to stop impending disaster,” Marc said matter-of-factly. “It’s what we’re supposed to do.”

Marc’s older brother, Alexander, was diagnosed with kidney disease before he was old enough to walk. Back then, the doctors told Alexander’s parents he probably wouldn’t live to enter kindergarten. But he did. Then the doctors said he wouldn’t live to see his 10th birthday. But he did.

The ominous predictions continued, but his will to live always won out. As medications advanced, Alexander was able to control his disease without dialysis. As children, Alexander’s three brothers probably didn’t know that Alexander’s health—even his ability to live one year longer—was so precarious. “I don’t think that we were ever fully aware of that. We just knew our brother was sick,” Marc recalled.

When Marc was about 12, he remembers telling his brother he would give him a kidney if he ever needed one. Thirty-two years later, in August 1996, Alexander took him up on that offer.

By now Alexander’s kidneys had deteriorated to the point where it was clear he might not survive without a new kidney. Marc immediately asked to be tested to see if he would be a match.

“It was just a no-brainer,” Marc said. Even back then, he didn’t really see it as that big of a deal.

“This is just one of the things I’ve got going on in the next couple of weeks,” Marc recalled thinking. “I’ve got meetings, a new business venture, a new home and other things I’m doing as well.”

Marc was a match—which he always sensed he would be—and the surgery was scheduled. Before the operation, Marc was in great physical health, and his brother obviously wasn’t. For a short time, the surgery flip-flopped that. Now Marc was recovering from major surgery, but Alexander was immediately feeling better because he had a new kidney that was doing its job. But that didn’t last.

About six months after the surgery, Alexander developed complications with one of his medications, and began to have some rejection reactions. The doctors were advising that he get rid of the donated kidney and go on dialysis. He called Marc and asked for his opinion. It was his kidney, after all.

“It’s yours now. You can do what you want with it,” Marc recalled telling his brother. Together they assessed different treatment options that could be done while preserving the donated kidney. Ultimately, Alexander’s condition improved. That was nearly 13 years ago. Today, Alexander is retired and living with his wife in Florida.

Marc said he never really suffered any effects as a result of donating one kidney. An avid bicyclist and skier before and after surgery, he says nothing has changed in his life. Marc doesn’t think too often about his choice to give his brother a kidney. Occasionally, he’s reminded by the scar, but even in retrospect, the decision was simple. And he hopes others will consider doing the same.

“If it can help someone, my goodness yes, do it. What’s the downside?”

Read more transplant stories.

Marc’s story was written by volunteer Gabrielle Johnston.

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What is a Living Donor

FACTS ABOUT LIVING DONOR KIDNEY DONATION

There’s two ways a person can be a LIVING DONOR.

1) As a Direct Donor. This is done by calling the Donor Coordinator to register to be cross-matched. (just a blood test) If found to be a match, a complete physical work-up would be given to determine if the potential donor is healthy enough to donate without any risk to their health or risk of rejection of the kidney for the recipient. You DO have to match your recipient’s blood type to do this.

2) By entering The National Kidney Registry (a Paired- Kidney Exchange where a the donor gives a kidney in return for a better match for the recipient.) You DO NOT have to match your recipients blood type to do this.

⦁ WE ARE BORN WITH AN EXTRA KIDNEY.  You only need one to live a full healthy life. After recovery, a living donor can return to their normal activities, with the exception of some contact sports to protect the remaining kidney from injury.

The average life of a kidney transplanted from a cadaver is 10 years. The average life of a kidney transplanted from a living donor is 25 years.

⦁ Being a Living Donor does not impact a woman’s ability to have a child.

⦁ All medical expenses for a living donor are paid by the recipient’s insurance.

⦁ There are assistance programs (American Transplant Foundation; National Living Donor Assistance Center are two) that will help with non-medical expenses such as lost wages, mortgage/rent, travel and lodging.

⦁ The majority of the living donor surgery is a laparoscopic procedure.

⦁ The Hospital stay is 1-2 days for the living donor

⦁ Recuperation for a living donor is generally 2- 6 weeks.

⦁ Life expectancy for a living donor is the same or better than the general population. This is due to 1) only extremely healthy people are chosen to be living donors; and 2) the act of giving the gift of life has a powerful positive impact, which leads to a healthier and longer life.

⦁ The risk for a living donor to have kidney failure later in life is no higher than the general population and the risk of complications is about 1%; lower than that of any general surgery.

⦁ A potential living donor can change their mind at ANY TIME during the process.

These are just some of the facts about LIVING DONOR KIDNEY DONATION. For more information visit:

www.kidneyregistry.org

www.livingdonorsonline.org

To receive information about being a LIVING DONOR for Becky (Rebecca Hillard), contact-

DONOR COORDINATOR, Jessica Enzwieler @513-585-1427

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The Open Letter

AN OPEN LETTER ABOUT REBECCA WILSON HILLARD (BECKY)

If Becky is your friend or family you already know most of this.This is for those that don’t know…

Five years ago, on June 1, 2010, Becky (a 35 year old single mom of four teenagers) was diagnosed with End Stage Renal Disease. Since then she has been on Peritoneal Dialysis. Becky’s life, and her home have been filled with..Home dialysis machine,Huge stacks of boxes of Dialysis solution, Paper towels,Antibacterial soap, Face masks, 2×2 & 4×4 gauze, @ 10 different medications, Hand sanitizer, Blood pressure cuff,Cassette for machine, Patient extensions,Drain line extensions, Dressings for exit site, Mini caps for catheter,Antibiotics in case of infection….. and more. Even with all the chaos, Becky remains thankful for dialysis.

It keeps her alive.

A little over a year ago, Becky began the search for a kidney donor. Out of the first four people tested, her sister-in-law, Nikki was the closest match. Following many months of examinations and procedures for both of them, the transplant surgery was set for February 10, 2015. Two weeks before the surgery, Becky went through a “desensitization” procedure to lower or eliminate any antibodies she had to Nikki’s blood. Twelve hours before the surgery, it was cancelled due to a sudden and extreme rise in the Becky’s antibodies to Nikki’s blood. There’s still not a clear answer why that happened. We only know that if the surgery had gone forward, the kidney would’ve been rejected and possibly worse. Nikki is no longer a donor candidate.

Becky continued on dialysis….

Becky has a wonderful, large circle of family and friends. Many of them have pursued being a Living Donor by being a Direct Donor or entering the NKR (a National Paired Kidney Exchange) So far, no viable Donor has been found.

Becky continues to be on dialysis and prays for a kidney….

Recently, I was asked by the Christ Hospital Kidney Donor Champion Program to be Becky’s Donor Champion (or Advocate). This means That I will be speaking on Becky’s behalf, Whenever, Wherever, and to Whoever I can to expand the network of people who know about Becky’s situation and perhaps reach someone who would consider the heroic gift of donation.

Although her health is currently stable, Becky will need a transplant in the near future in order to survive. She is in desperate need of a kidney. She is on the Deceased Donor Transplant List, but the wait is 5 + years . The best option is for a Living Direct Donor. Second would be to enter the NKR, Paired Kidney Exchange. Either of these would require a volunteer to be willing to give a kidney to save a life.

Please share this letter with your family, friends, church, work, school, or any other communities you belong to.

Any questions about Live Kidney Donation or to receive a donor packet, contact-

Jessica Enswieler, Donor Transplant Coordinator-   513-585-1427

Thank you,

Sharon Wilson (Becky’s “Kidney Champion” and Mom)

nkygrammy@yahoo.com.

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Hello world!

BILL-BECKY (2)Hello!

The purpose of this Blog is to share the journey of my daughter, Rebecca Wilson Hillard (Becky) as she moves forward toward a much-needed Kidney Transplant. I’m Becky’s Mom, Sharon. Though I will be the one posting, the Blog is all about Becky.

Becky was diagnosed with End Stage Renal Disease on June 1, 2010, and has been on Peritoneal Dialysis since then. A year ago, she began actively searching for a donor.

In the coming days, I will be sharing her story and other information about being a Living Kidney Donor. I will also share other ways you can help Becky. The most important one is to lift her up in prayer.

We have placed Becky’s situation in God’s hands. He is faithful! His timing is perfect. We will continue to spread Becky’s story so everyone else can share in the blessing of her healing.

With love in Christ,

Sharon

To contact me with any questions, please use the form below.

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